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The Myrovlytis Trust is a charity that promotes research into rare genetic disorders, and advances education of the public in medical and molecular genetics.

Founded in late 2007, the Trust is focusing initially on Birt-Hogg-Dubé syndrome, an inherited monogenetic condition that leads to skin lesions, pneumothorax (collapsed lung) and an increased risk of renal cancer.

Some of the Trust’s activities so far:

Scientific research: funding basic research to increase our understanding of the biology underlying BHD syndrome. Several projects currently supported in university laboratories around the world

BHD Symposiums: helping to organise and fund international conferences on BHD:

European BHD Consortium: supporting this international network of clinicians and other BHD researchers

BHDSyndrome.org: created, with the BHD Family Alliance, the first point of reference for anyone interested in BHD syndrome

Renal gene therapy: organised the Trust’s first Scientific Thought-Leader Workshop. Currently funding several research projects looking at renal gene therapy

Travel Grants

research

News and Events

February 8th 2010
The abstract submission deadline for the second BHD Symposium is…
January 13th 2010
Registration is now open for the …
December 1st 2009
The EBC has just published guidelines…
November 24th 2009
On 16th November in London …
more news…