Home
Welcome
The Myrovlytis Trust is a charity that promotes research into rare genetic disorders, and advances education of the public in medical and molecular genetics.
Founded in late 2007, the Trust is focusing initially on Birt-Hogg-Dubé syndrome, an inherited monogenetic condition that leads to skin lesions, pneumothorax (collapsed lung) and an increased risk of renal cancer.
Some of the Trust’s activities so far:
- Funding basic scientific and medical research to increase our understanding of the biology underlying BHD syndrome. Several projects currently supported in university laboratories around the world
- Helping to organising and fund the first two international scientific meetings about BHD Syndrome:
- Inaugural BHD Symposium, Denmark, 2008. Co-organised with the BHD Family Alliance: programme; abstracts.
- Second BHD Symposium, Washington, DC, 2010. Co-funded with the NIH’s Office of Rare Disease Research. Programme and abstracts.
- European BHD Consortium: supporting this international network of clinicians and other BHD researchers
- BHDSyndrome.org: created, with the BHD Family Alliance, the first point of reference for anyone interested in BHD syndrome
- Renal gene therapy: organised the Trust’s first Scientific Thought-Leader Workshop. Currently funding several renal gene therapy research projects
News and Events
August 2nd 2010
The Myrovlytis Trust and the Genetic Alliance UK have submitted…
July 28th 2010
The Myrovlytis Trust is delighted to award a grant extension…
June 29th 2010
The Myrovlytis Trust is delighted to award a grant extension…
May 24th 2010
Videos of Dr Laura Schmidt, Dr Berton Zbar, Dr Frank…