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The Myrovlytis Trust is a charity that promotes research into rare genetic disorders, and advances education of the public in medical and molecular genetics.
Founded in late 2007, the Trust is focusing initially on Birt-Hogg-Dubé syndrome, an inherited monogenetic condition that leads to skin lesions, pneumothorax (collapsed lung) and an increased risk of renal cancer.
Some of the Trust’s activities so far:
Scientific research: funding basic research to increase our understanding of the biology underlying BHD syndrome. Several projects currently supported in university laboratories around the world
BHD Symposiums: helping to organise and fund international conferences on BHD:
- Inaugural BHD Symposium – organised with the BHD Family Alliance: programme; abstracts.
- Second BHD Symposium – to be held in Washington DC, 22nd April 2010. Registration is open!
- UPDATE: Abstract submission deadline: 15th February 2010
- We are pleased to announce that Dr. Berton Zbar is this year’s guest speaker.
European BHD Consortium: supporting this international network of clinicians and other BHD researchers
BHDSyndrome.org: created, with the BHD Family Alliance, the first point of reference for anyone interested in BHD syndrome
Renal gene therapy: organised the Trust’s first Scientific Thought-Leader Workshop. Currently funding several research projects looking at renal gene therapy
