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Welcome

Welcome to the website of the Myrovlytis Trust. This site is intended to provide information about the Trust and its activities. If you have questions that are not answered on this site, please do not hesitate to contact us. Two recent articles introducing the Trust are available here and here.

Founded in 2007, the Myrovlytis Trust has two aims: to promote research into rare genetic disorders, including but not limited to Birt-Hogg-Dubé syndrome; to advance education of the public in medical and molecular genetics. The Trust is focusing initially on Birt-Hogg-Dubé syndrome. To further its aims, the Trust's current activities include:
  1. Helping to organise and fund the Inaugural BHD Symposium, held on 3rd September in Roskilde, Denmark. Organised with the BHD Family Alliance. The programme is here.

  2. Organising and funding a small, closed, international meeting of leading gene therapists and kidney specialists. Held in London in August. This meeting aimed to identify current barriers to progress in renal gene therapy and how to overcome them.

  3. Funding scientific research to increase our understanding of the molecular mechanisms underlying BHD syndrome (see News and Events and About us for details).

  4. Supporting the European BHD Consortium - a network of clinicians and other researchers.

  5. Awarding travel grants to enable scientists to attend a conference or to spend time collaborating in another laboratory (see Travel Grants for details).

  6. Creating a website, with the BHD Family Alliance, that will be the first point of reference for anyone interested in BHD syndrome - families, researchers etc.
 
 
     
      News and Events

September 15th.  Professor Terry Cook, Professor of Renal Pathology at Imperial College, London, has joined the Trust's Scientific Advisory Board. (more)

September 4th.  The Inaugural BHD Symposium was held in Roskilde, Denmark, on 3rd September. (more)

August 30th.  The programme for the Inaugural BHD Symposium is now available. (more)

August 11th.  Professor Dian Donnai, Professor of Medicinal Informatics at the University of Manchester, former Consultant Adviser in Genetics to the Chief Medical Officer, and former member of the UK Government's Genetics and Insurance Committee, has joined the Trust’s Scientific Advisory Board. (more)

July 11th.  Two recent articles introduce the Trust to a wider audience. See the News or About Us pages for more details. (more)

July 7th.  Professor Andrew Hopkins, Professor of Medicinal Informatics, at the University of Dundee, and formerly of Pfizer, has joined the Trust’s Scientific Advisory Board. (more)

June 10th.  The Myrovlytis Trust is now a member of the Genetic Interest Group. (more)

Jun 3rd.  The Myrovlytis Trust's Research Evaluation Procedure and Scientific Strategy are now publically available on the About Us page. (more)

Jun 3rd.  Dr Arnim Pause at McGill University has kindly offered to make an unpublished FLCN+/- mouse line available to the BHD research community, for research that does not duplicate work in his lab. (more)

 

 

 
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