About Us
The Myrovlytis Trust was founded in 2007 and is registered in the UK with the Charity Commission (number 1122073).
Articles introducing the Trust have appeared in the Genetic Interest Group’s newsletter, and the European Union’s Rare Diseases Task Force newsletter OrphaNews Europe. Read an interview on ReachMD here.
The Trust has two aims:
1. To advance and promote research into medical and molecular genetics in order to better understand, diagnose, prevent, cure and relieve conditions caused by genetic disorders and/or diseases including but not limited to Birt-Hogg-Dubé syndrome and the free dissemination of the results of such research to the public; and
2. To advance education of the public in medical and molecular genetics.