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Welcome

Welcome to our website. This site is intended to provide information about the Myrovlytis Trust and its activities. If you have questions that are not answered on this site, please do not hesitate to contact us.

Founded in late 2007, the Myrovlytis Trust aims: to promote research into rare genetic disorders, including but not limited to Birt-Hogg-Dubé syndrome; to advance education of the public in medical and molecular genetics. The Trust is focusing initially on Birt-Hogg-Dubé syndrome. Some of the Trust's activities so far:
  1. Scientific research. Funding basic research to increase our understanding of the biology underlying BHD syndrome (see News and Events and About us)

  2. Inaugural BHD Symposium. Helped to organise, with the BHD Family Alliance, and fund the first scientific conference about BHD syndrome. Programme here. Abstracts here

  3. The European BHD Consortium . Supporting this network of clinicians and other researchers from seven countries

  4. BHDSyndrome.org. With the BHD Family Alliance, created what we hope will become the first point of reference for anyone interested in BHD syndrome

  5. First Myrovlytis Trust Scientific Thought-Leader Workshop. Organised meeting of leading international gene therapists and kidney specialists to try to identify current barriers to progress in renal gene therapy and how to overcome them

  6. Travel grants (see Travel Grants) awarded.
 
 
     
      News and Events

June 24th.  The Myrovlytis Trust is pleased to announce further funding into ongoing research of the crystal structure of folliculin.(more)

June 5th.  A new FLCN mutation database is available.(more)

June 2nd.  Duncan Azzopardi has joined the Myrovlytis Trust as Charity Officer.(more)

May 12th.  Two research positions (one PhD student and one postdoc) will soon be available with Dr Maurice van Steensel, Maastricht University.(more)

March 3rd.  Up to four $25k USD pilot grants are being offered, via an initiative with Partnership for Cures, for projects that “can have a direct and significant impact on the BHD patient population within the next 12-24 months”. More information here and here.(more)

January 20th.  The Trust is recruiting a charity officer. Details and application procedure here.

January 12th.  The European BHD Consortium met in Paris on December 19th: meeting report. (more)

December 12th.  A radio interview with the Trust charity manager on ReachMD discusses some of the work and aims of the Trust. (more)

November 5th.  the Nihon Rat (Okimoto et al., 2004) is now available to the BHD research community. (more)

 

 

 
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