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Welcome

Welcome to our website. This site is intended to provide information about the Myrovlytis Trust and its activities. If you have questions that are not answered on this site, please do not hesitate to contact us. Two recent articles introducing the Trust are available here and here.

Founded in 2007, the Myrovlytis Trust aims: to promote research into rare genetic disorders, including but not limited to Birt-Hogg-Dubé syndrome; to advance education of the public in medical and molecular genetics. The Trust is focusing initially on Birt-Hogg-Dubé syndrome. In its first year, the Trust's activities have included:
  1. Funding basic scientific research to increase our understanding of the biology underlying BHD syndrome (see News and Events and About us)

  2. Supporting the Inaugural BHD Symposium. Helping to organise, with the BHD Family Alliance, and funding the first scientific conference about BHD syndrome. Programme here. Abstracts here

  3. Supporting the European BHD Consortium - a network of clinicians and other researchers from seven countries

  4. Creating BHDSyndrome.org, with the BHD Family Alliance. Intended to be the first point of reference for anyone interested in BHD syndrome

  5. Organising the first Myrovlytis Trust Scientific Thought-Leader Workshop. Leading international gene therapists and kidney specialists met to try to identify current barriers to progress in renal gene therapy and how to overcome them

  6. Awarding travel grants (see Travel Grants)
 
 
     
      News and Events

November 12th.  The Myrovlytis Trust has joined the recently launched Rare Disease UK. (more)

November 5th.  the Nihon Rat (Okimoto et al., 2004) is now available to the BHD research community. (more)

November 3rd.  Folliculin antibodies are being developed by Dr Arnim Pause at McGill , funded by the Myrovlytis Trust, to be made freely available to BHD researchers. (more)

October 13th.  The abstracts of the talks and posters from the Inaugural BHD Symposium have been published on Pubmed and are now available (more)

October 5th.  The second planning meeting of the European BHD Consortium was held on the 3rd September in Roskilde, Denmark. The next meeting is planned for December 19th in Paris. (more)

September 16th.  The Myrovlytis Trust is delighted to announce the award of a three year grant to Dr Andy Tee of the Institute of Medical Genetics at Cardiff University. (more)

September 15th.  Professor Terry Cook, Professor of Renal Pathology at Imperial College, London, has joined the Trust's Scientific Advisory Board. (more)

 

 

 
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