Other funding charities
•	Cancer Research UK
•	The Wellcome Trust
•	Howard Hughes Medical Institute

More information about BHD
•	Wikipedia BHD syndrome entry
•	Birt Hogg Dubé Family Alliance
•	GeneReviews entry
•	Our forthcoming website about BHD syndrome

Organisations focusing on rare diseases
•	VHL Family Alliance
•	OrphaNet
•	Rare Diseases Task Force
•	AIRG-France (Association for Information and Research into Genetic Kidney Disorders)
•	Genetic Interest Group

Gene Therapy and other research
•	British Society for Gene Therapy
•	European Society of Gene and Cell Therapy
•	UK Genetic Testing Network
•	UK Clinical Research Network
•	The Chapel Hill Project