Links

Other funding charities

• Cancer Research UK
• The Wellcome Trust
• Howard Hughes Medical Institute

More information about BHD

• Wikipedia BHD syndrome entry
• Birt Hogg Dubé Family Alliance
• GeneReviews entry
• BHDSyndrome.org

Organisations focusing on rare diseases

• VHL Family Alliance
• OrphaNet
• Rare Diseases Task Force
• AIRG-France (Association for Information and Research into Genetic Kidney Disorders)
• Genetic Alliance UK

Gene Therapy and other research

• British Society for Gene Therapy
• European Society of Gene and Cell Therapy
• UK Genetic Testing Network
• UK Clinical Research Network
• The Chapel Hill Project