As part of the Myrovlytis Trust’s commitment to fostering communication between the often separate spheres of researchers and patients, we have an ongoing project recording interviews with leading researchers in BHD syndrome. The researchers not only explain their projects and describe interesting future areas of investigation, but also offer a personal perspective of working in science and medicine.
We have worked with Jill Woodward, a filmmaker and producer based in New York, to interview researchers at the Fourth BHD Symposium, the Third BHD Symposium and at the National Cancer Institute, NIH. We have also worked with Yada-Yada Productions and science broadcaster Dr Sharon Ann Holgate, to film researchers in the United Kingdom.
The first video was uploaded to BHDSyndrome.org at the end of March 2011; there are currently 19 videos in show. See the Video Interviews.