Other funding charities

• Cancer Research UK
• The Wellcome Trust
• Howard Hughes Medical Institute

More information about BHD

• Wikipedia BHD syndrome entry
• Birt Hogg Dubé Family Alliance
• We are in the process of developing our own website about BHD syndrome .  This website will be the first point of reference for anyone interested in the syndrome; researchers, students, patients and any other interested parties.

Organisations focusing on rare diseases

• VHL Family Alliance
• OrphaNet
• Rare Diseases Task Force
• AIRG-France (Association for Information and Research into Genetic Kidney Disorders)

Gene Therapy and other research

• British Society for Gene Therapy
• European Society of Gene and Cell Therapy
• UK Genetic Testing Network
• UK Clinical Research Network
  
• The Chapel Hill Project