About Us

The Myrovlytis Trust is a charity founded in 2007 to promote research into rare genetic disorders, and advance education of the public in medical and molecular genetics.

It is registered in the UK with the Charity Commission (number 1122073). See Our Vision and Our Work for more details on our aims and activities.

The BHD Foundation was founded in late 2011 as the arm of the Myrovlytis Trust to oversee activities relating to BHD syndrome. It is registered in the UK with the Charity Commission (number 1122073-1).