BHDSyndrome.org News

The Myrovlytis Trust has teamed up with the Birt Hogg Dube Family Alliance to develop a comprehensive website about BHD syndrome. Both partners hope that the website will be the first point of reference for anyone interested in BHD syndrome – families, researchers, clinicians etc. The Alliance’s Cathy Sherman welcomed the plans, saying: “The Trust and the Alliance share the goals of promoting knowledge and understanding of the BHD syndrome; I believe that this new website will reflect this and will be a great asset to anyone who is seeking information about Birt Hogg Dube”.