This week’s Powerful Patient radio talk show features an interview with Jean, who has been diagnosed with BHD. Jean shares her experiences with the disease including the difficulty she had getting a diagnosis and how she manages her health now.
Jean is a volunteer at the VHL Family Alliance, and provides patient support for those with BHD, VHL, and HLRCC and runs a support forum for BHD patients on the Inspire website. She can be contacted at firstname.lastname@example.org.
To listen to this interview, please click here.