We are excited to announce that the Patients and Families programme is now published online here. The BHD programme will take place on 11th May, while the HLRCC programme will be on 12th May. Experts for the informal Q&A sessions will include a dermatologist, a urologic surgeon, a pulmonologist and a genetic counsellor.
Now is the time to register! The registration fee will increase by £25 on 2 May.
Additionally, as BHD is a rare disease, opportunities to meet together are few. Don’t miss this chance to learn about BHD syndrome and meet the patients, medical professionals, and researchers who make up the global BHD community!
Please email contact@BHDSyndrome.org with any questions.