BHDSyndrome.org

A fundamental part of the Myrovlytis Trust’s work to support the BHD community is BHDSyndrome.org, the primary reference for BHD online.

BHDSyndrome.org offers a number of creative and useful resources to inform, empower and build up the BHD community, such as interviews with researchers and people affected by BHD, and BHD Worldwide, an interactive map where users can post themselves. It is directed towards families affected by BHD as well as researchers and health professionals.

BHDSyndrome.org was created in partnership with the BHD Family Alliance.